Lösemili Çocuğa Sahip Anne ve Babalarin Yaşam Kalitesi ve Psiko-Sosyal Gereksinimleri

Abstract

JANGI, Masoumeh. Quality of Life and Psycho-Social Needs of Mothers and Fathers with Leukemia Child, PhD Thesis, Ankara, 2023. Given the nature of the treatment process of childhood cancers, the general self efficacy of parents in the care of the child during the treatment process is expected to play an important role in children's response to treatment. It also affects the emotional state of the parents. As in all chronic diseases, the care of the child with leukemia is quite difficult, the treatment and treatment period is long, the need for care is multi-dimensional, and parents must participate in this process and overcome this crisis together. The self-efficacy of the parents is also an effective factor in the quality of care provided to the child. In general, it is revealed that parents of children need psychosocial support in diseases such as leukemia which have severe treatment process. The aim of this study was to determine the quality of life and psychosocial needs of parents with leukemia. In this study, qualitative research method was used as the research method. Qualitative research is used to reveal differences between variables in the analysis group. The population of the study consists of the parents of the children with leukemia who have been treated in LÖSEV Foundation in Ankara. There are close to 40,000 children with leukemia registered in this foundation. A total of 384 mothers or fathers are the sample size with 95% confidence level and 5% sampling error. As a data collection tool; ıtıcı Introductory Information Form amacıyla to obtain general information about the characteristics of leukemia children and their parents prepared by the researcher, “World Health Organization Quality of Life Scale Short Form (WHOQOL-Bref) for measuring the quality of life of mothers and children with leukemia; “Multidimensional Perceived Social Support Scale (MSPSS)” was used to determine the psychosocial needs of fathers. The Kolmogorow-Smirnov test will be used to determine whether the data are normally distributed. In case data is normally distributed, independent groups t test, one-way analysis of variance (ANOVA) and pearson correlation analysis will viii be used in the analysis of the data. It will also benefit from correlation analysis for the relationship between quality of life and psychosocial needs of parents with leukemia. The analysis of the data obtained from the research will be carried out in the Statistical Package for Social Science (SPSS) 22.0 package program. As a result, parents of children with leukemia seem to have moderate problems in terms of physical, psychological, social, environmental and basic needs during the treatment process. In addition, more than half of the parents (53.9%) seem to have moderate and severe depression. In this direction, suggestions are presented in the perspective of empowerment approach to increase the quality of life of parents with children with leukemia and to reduce depression levels.