Abstract
The purpose of this study is to examine the educational needs of school-age children with chronic diseases from the perspectives of students and school counselors. The study group of the research, which was conducted with a qualitative research design, consisted of 27 students aged 8-14 years with 9 type 1 diabetes, 8 asthma, 8 allergy and 2 epilepsy diseases, 6 school counselors and 3 guidance teachers. The data were obtained through semi-structured interviews conducted with an interview form prepared by the researcher. In the findings of the students analyzed with the interpretative phenomenological analysis method, it was found that they needed supportive relationships and open communication in terms of disease management at school, they may experience absenteeism for various reasons, students demand that their special needs should not be ignored while they need to feel normal, the presence of students who experience bullying, and the feelings of guilt and gratitude they feel towards their families while their mothers mostly take care of them. Findings obtained from school counsellors/guidance teachers, it was found that they mostly accessed information about students with chronic diseases from parents, recommended support education opportunities to support academic success, needed cooperation in order to provide effective support to students, did not conduct routine interviews with these students and finally, the trainings they received should be improved on chronic diseases. Based on the results, recommendations were made to raise awareness of students with chronic diseases in schools and to increase cooperation.
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Aaberg, K. M., Bakken, I. J., Lossius, M. I., Lund Søraas, C., Håberg, S. E., Stoltenberg, C., Surén, P. & Chin, R. (2016). Comorbidity and childhood epilepsy: a nationwide registry study. Pediatrics, 138(3). https://doi.org/10.1542/peds.2016-0921
Aguiar, B. V. K., Guerreiro, M. M., McBrian, D., & Montenegro, M. A. (2007). Seizure impact on the school attendance in children with epilepsy. Seizure, 16(8), 698-702. https://doi.org/10.1016/j.seizure.2007.05.013
Al, S., Özcebe, L. (2017). Sosyal güvenlik kurumu kayıtlarında 0-18 yaş aralığı için astım hastalığının analizi. Sosyal Güvence, 6 (12), 27-59. https://doi.org/10.21441/sguz.2017.61
Alam, S. (2020). Ecological Systems Theory. J. Egbert ve M. F. Roe (Ed.), Theoretical Models for Teaching and Research (çevrimiçi yayın). Washington State University. https://opentext.wsu.edu/theoreticalmodelsforteachingandresearch/chapter/ecological-systems-theory/
Aldakheel, F. M. (2021). Allergic diseases: a comprehensive review on risk factors, immunological mechanisms, link with COVID-19, potential treatments, and role of allergen bioinformatics. International Journal of Environmental Research and Public Health, 18(22), 12105. https://doi.org/10.3390/ijerph182212105
American Academy of Pediatrics & Flais, S. V. (2018). Caring for your school-age child: Ages 5-12. Bantam. https://doi.org/10.1542/9781610022569
American Academy of Pediatrics Committee on Children With Disabilities and Committee on Psychosocial Aspects of Child and Family Health. (1993). Psychosocial risks of chronic health conditions in childhood and adolescence. Pediatrics, 92(6), 876–878.
American Academy of Pediatrics, (2021). National Coordinating Center for Epilepsy. https://www.aap.org/en/patient-care/epilepsy/
American Diabetes Associaton, (2024). Understanding type 1 diabetes. https://diabetes.org/about-diabetes/type-1
American School Counselor Association [ASCA] (2019). The ASCA National Model: A Framework for School Counseling Programs, Fourth Edition. Alexandria, VA: Author.
Amerika Astım ve Alerji Derneği [AAFA], (2015). Allergies. https://aafa.org/allergies/
Amerikan Alerji Astım ve İmmünoloji Akademisi [AAAAAI], (2023). Anaphylaxis. https://www.aaaai.org/conditions-treatments/allergies/anaphylaxis
Artuvan, Z., Yurtsever, S. (2020). Tip 1 diyabetli adölesanların benlik saygısının diyete uyumla ilişkisi. İzmir Katip Çelebi Üniversitesi Sağlık Bilimleri Fakültesi Dergisi, 5(1), 1-5. https://hdl.handle.net/20.500.14114/2586
Ashton, J., & Bailey, J. (2004). Slipping through the Policy Cracks: Children with Chronic Illness in Early Childhood Settings. Australasian Journal of Early Childhood, 29(1), 50–58. https://doi.org/10.1177/183693910402900110
Baker, J. F., Billig, E., Michaud, K., Ibrahim, S., Caplan, L., Cannon, G. W., Stokes, A., Majithia, V. & Mikuls, T. R. (2015). Weight loss, the obesity paradox, and the risk of death in rheumatoid arthritis. Arthritis & Rheumatology, 67(7), 1711-1717. https://doi.org/10.1002/art.39136
Baker, K., Claridge, A.M. (2023). “I have a Ph.D. in my daughter”: Mother and Child Experiences of Living with Childhood Chronic Illness. Journal of Child and Family Study, 32, 2625–2636. https://doi.org/10.1007/s10826-022-02506-8
Baral, V. R., & O’B Hourihane, J. (2005). Food allergy in children. Postgraduate medical journal, 81(961), 693-701. https://doi.org/10.1136/pgmj.2004.030288
Barnett, T., Tollit, M., Ratnapalan, S., Sawyer, S. M., & Kelaher, M. (2023). Education support services for improving school engagement and academic performance of children and adolescents with a chronic health condition. Cochrane Database of Systematic Reviews, (2). https://doi.org/10.1002/14651858.CD011538.pub2
Bednall, J. (2006). Epoche and bracketing within the phenomenological paradigm. Issues in Educational Research, 16(2), 123-138. https://iier.org.au/iier16/bednall.html
Bell, M. F., Bayliss, D. M., Glauert, R., Harrison, A., & Ohan, J. L. (2016). Chronic illness and developmental vulnerability at school entry. Pediatrics, 137(5). https://doi.org/10.1542/peds.2015-2475
Bender, B., & Zhang, L. (2008). Negative affect, medication adherence, and asthma control in children. Journal of allergy and clinical immunology, 122(3), 490-495. https://doi.org/10.1016/j.jaci.2008.05.041
Bingöl, A., Uygun, D. F. K., Akdemir, M., Erengin, H., Dogruel, D., & Bostancı, I. (2017). Çocuklarda besin allerjisinin karakteristik özellikleri: Ulusal çok merkezli çalışma. Asthma Allergy Immunol, 15, 10-1.
Bircher, J. (2005). Towards a dynamic definition of health and disease. Medicine, health care and philosophy, 8, 335-341. https://doi.org/10.1007/s11019-005-0538-y
Blackman, J. A., & Gurka, M. J. (2007). Developmental and behavioral comorbidities of asthma in children. Journal of Developmental & Behavioral Pediatrics, 28(2), 92-99. https://doi.org/10.1097/01.DBP.0000267557.80834.e5
Bobo, N., Olson, J., & Simmons-Wright, S. (2022). Using local school wellness policies to build a culture of health for students with chronic health conditions: The school nurse role. NASN School Nurse, 37(1), 19-24. https://doi.org/10.1177/1942602X211026365
Brady, J. P., Bruce, D., Foster, E., & Shattell, M. (2020). Self-efficacy in researching and obtaining medical cannabis by patients with chronic conditions. Health Education & Behavior, 47(5), 740-748. https://doi.org/10.1177/1090198120914249
Bravo, L., Killela, M. K., Reyes, B. L., Santos, K. M. B., Torres, V., Huang, C. C., & Jacob, E. (2020). Self-management, self-efficacy, and health-related quality of life in children with chronic illness and medical complexity. Journal of Pediatric Health Care, 34(4), 304-314. https://doi.org/10.1016/j.pedhc.2019.11.009
Brener, N.D., Demissie, Z., McManus, T., Shanklin, S.L., Queen, B., Kann, L. (2017). School Health Profiles 2016: Characteristics of Health Programs Among Secondary Schools. Atlanta: Centers for Disease Control and Prevention. https://www.cdc.gov/healthyyouth/data/profiles/pdf/2016/2016_Profiles_Report.pdf
Bronfenbrenner, U. (1979). The Ecology Of Human Development: Experiments By Nature And Design. Cambridge: Harvard University Press.
Canto, A. I., Chesire, D. J., Buckley, V. A., Andrews, T. W., & Roehrig, A. D. (2014). Barriers to meeting the needs of students with traumatic brain injury. Educational Psychology in Practice, 30(1), 88-103. https://doi.org/10.1080/02667363.2014.883498
Caplan, R., Siddarth, P., Gurbani, S., Hanson, R., Sankar, R., & Shields, W. D. (2005). Depression and anxiety disorders in pediatric epilepsy. Epilepsia, 46(5), 720-730. https://doi.org/10.1111/j.1528-1167.2005.43604.x
Centers for Disease Control and Prevention (2013). Voluntary Guidelines for Managing Food Allergies in Schools and Early Care and Education Programs. Washington, DC: US Department of Health and Human Services. https://www.cdc.gov/healthyschools
Centers for Disease Control and Prevention [CDC], (2019). 2019 Archived National Asthma Data. https://www.cdc.gov/asthma/archivedata/2019/2019_archived_national_data.html
Centers for Disease Control and Prevention [CDC], (2022). CDC Healthy Schools, Food Allergies. https://www.cdc.gov/healthyschools/foodallergies/index.htm
Centers for Disease Control and Prevention [CDC], (2022). National Diabetes Statistics Report. https://www.cdc.gov/diabetes/data/statistics-report/index.html
Centers for Disease Control and Prevention. (2019). AsthmaStats: Uncontrolled Asthma Among Children, 2012–2014. U.S. Department of Health and Human Services. https://www.cdc.gov/asthma/asthma_stats/uncontrolled-asthma-children.htm
Centers for Disease Control and Prevention. (2020). 2019 National Health Interview Survey Data. U.S. Department of Health & Human Services. https://www.cdc.gov/asthma/nhis/2019/data.htm
Charmaz, K. (1995). The body, identity, and self: Adapting to impairment. Sociological quarterly, 36(4), 657-680. https://doi.org/10.1111/j.1533-8525.1995.tb00459.x
Click, P. M. & Parker, J. (2011). Caring for school-age children (6th ed.). Wadsworth Cengage Learning.
Cohn, L. N., Pechlivanoglou, P., Lee, Y., Mahant, S., Orkin, J., Marson, A., & Cohen, E. (2020). Health outcomes of parents of children with chronic illness: a systematic review and meta-analysis. The Journal of pediatrics, 218, 166-177. https://doi.org/10.1016/j.jpeds.2019.10.068
Compas, B. E., Jaser, S. S., Dunn, M. J., & Rodriguez, E. M. (2012). Coping with chronic illness in childhood and adolescence. Annual review of clinical psychology, 8, 455-480. https://doi.org/10.1146/annurev-clinpsy-032511-143108
Cottrell, D. (2015). Prevention and treatment of psychiatric disorders in children with chronic physical illness. Archives of Disease in Childhood, 100(4), 303-304. https://doi.org/10.1136/archdischild-2014-307866
Creswell, J. W. (2019). Nitel araştırmacılar için 30 temel beceri (2. Baskı). (H. Özcan, Çev.). Anı Yayıncılık (Orijinal eserin basım tarihi 2015, 1. Baskı).
Creswell, J. W. (2021). Nitel araştırma yöntemleri,beş yaklaşıma göre nitel araştırma ve araştırma deseni (6. Baskı). (M. Bütün ve S. B. Demir, Çev. Ed.). Siyasal Kitabevi (Orijinal eserin basım tarihi 2008, 3. Baskı).
Crump, C., Rivera, D., London, R., Landau, M., Erlendson, B., & Rodriguez, E. (2013). Chronic health conditions and school performance among children and youth. Annals of epidemiology, 23(4), 179-184. https://doi.org/10.1016/j.annepidem.2013.01.001
Cui, W., Kobau, R., Zack, M. M., Helmers, S., & Yeargin-Allsopp, M. (2015). Seizures in children and adolescents aged 6-17 years-United States, 2010-2014. MMWR Morb Mortal Wkly Rep, 64(43), 1209-1214. https://www.cdc.gov/mmwr/pdf/wk/mm6443.pdf
Çakır, G. (2018). Kronik hastalığı olan çocukların okuldaki gereksinimlerinin belirlenmesi [Yayımlanmamış yüksek lisans tezi]. Gazi Üniversitesi.
Çocuklar İçin Özel Gereksinim Değerlendirmesi Yönetmeliği [ÇÖZGER] (2019). Resmî Gazete 30692 (20 Şubat 2019). https://www.resmigazete.gov.tr/eskiler/2019/02/20190220-1.htm
Davis, B., & Murphy, M. S. (2016). Playing with Moon Sand: a narrative inquiry into a teacher’s experiences teaching alongside a student with a chronic illness. Teachers and Teaching, 22(1), 6-20. https://doi.org/10.1080/13540602.2015.1023025
Davis, E. S. (2018). Elementary school counselors’ experiences counseling students with chronic illness. Journal of Child and Adolescent Counseling, 4(3), 239-252. https://doi.org/10.1080/23727810.2017.1422661
DeCosta, P., Grabowski, D., & Skinner, T. C. (2020). The psychosocial experience and needs of children newly diagnosed with type 1 diabetes from their own perspective: a systematic and narrative review. Diabetic Medicine, 37(10), 1640-1652. https://doi.org/10.1111/dme.14354
Disability Rights Education and Defense Fund [DREDF] (2022). Section 504 of the Rehabilitation Act of 1973. https://dredf.org/legal-advocacy/laws/section-504-of-the-rehabilitation-act-of-1973/
Durualp, E., Kara, F. N., Yılmaz, V., Alabeyoğlu, K. (2010). Kronik Hastalığı Olan ve Olmayan Çocukların ve Ebeveynlerinin Görüşlerine Göre Yaşam Kalitelerinin Karşılaştırılması. Ankara Üniversitesi Tıp Fakültesi Mecmuası, 63(2), 55-63. https://doi.org/10.1501/Tipfak_0000000761
Dünya Sağlık Örgütü [WHO], (2022). World health statistics 2022 report. https://www.who.int/publications/i/item/9789240051157
Dünya Sağlık Örgütü [WHO]. (2021). Fact sheets asthma. https://www.who.int/news-room/fact-sheets/detail/asthma
Dünya Sağlık Örgütü [WHO]. (2022). Fact sheets epilepsy. https://www.who.int/news-room/fact-sheets/detail/epilepsy
Dyson, S. M., Atkin, K., Culley, L. A., & Dyson, S. E. (2007). The educational experiences of young people with sickle cell disorder: a commentary on the existing literature. Disability & Society, 22(6), 581–594. https://doi.org/10.1080/09687590701560196
Eatough, V., & Smith, J. A. (2017). Interpretative phenomenological analysis. C. Willig, W. Stainton-Rogers (Ed.), Handbook of qualitative research in psychology (2. Baskı, s.193-209) içinde. SAGE Publications Inc.
Eddy, L., & Cruz, M. (2007). The relationship between fatigue and quality of life in children with chronic health problems: a systematic review. Journal for Specialists in Pediatric Nursing, 12(2), 105-114. https://doi.org/10.1111/j.1744-6155.2007.00099.x
Engelli Hakları Eğitim & Savunma Fonu [DREDF], (2023). A comparison of ADA, IDEA, and Section 504. https://dredf.org/legal-advocacy/laws/a-comparison-of-ada-idea-and-section-504/
Engin, E. A., Yıldırım, F., & Purutçuoğlu, E. (2021). Kronik hastalığa sahip çocukların psikososyal sorunları: pediatrik sosyal hizmet müdahaleleri odağında bir derleme. Güncel Pediatri Dergisi, 19(2), 271-279. https://doi.org/10.4274/jcp.2021.0033
Epilepsy Foundation, (2019). Facts & Statistcs About Epilepsy. https://www.epilepsy.com/what-is-epilepsy/statistics
Falvo, D. (2005). Psychosocial and functional aspects of chronic illness and disability. Medical and psychosocial aspects of chronic illness and disability. Jones and Bartlett Publishers.
Federico, M. J., McFarlane II, A. E., Szefler, S. J., & Abrams, E. M. (2020). The impact of social determinants of health on children with asthma. The Journal of Allergy and Clinical Immunology: In Practice, 8(6), 1808-1814. https://doi.org/10.1016/j.jaip.2020.03.028
Ferguson, P. & Walker, H. (2014). ‘Getting on with life’: resilience and normalcy in adolescents living with chronic illness, International Journal of Inclusive Education, 18(3), 227-240, https://doi.org/10.1080/13603116.2012.676082
Ferrante, G., & La Grutta, S. (2018). The burden of pediatric asthma. Frontiers in pediatrics, 6, 186. https://doi.org/10.3389/fped.2018.00186
Ferro, M. A., & Boyle, M. H. (2013). Self-concept among youth with a chronic illness: A meta-analytic review. Health Psychology, 32(8), 839–848. https://doi.org/10.1037/a0031861
Finlay, L. (2011). Interpretative phenomenological analysis. Phenomenology for therapists researching the lived world (1. Baskı, s.139-147) içinde. Wiley-Blackwell Publications.
Fitzgerald, C. (2011). Meeting the Educational Needs of Seriously Ill Children: The School’s Role. The New York State School Counseling Journal, 8(1), 16-19. https://tls.tc/CruPr
Forrest, C. B., Bevans, K. B., Riley, A. W., Crespo, R., & Louis, T. A. (2011). School outcomes of children with special health care needs. Pediatrics, 128(2), 303-312. https://doi.org/10.1542/peds.2010-3347
Freckmann, M., Seipp, A., Laass, M. W., Koletzko, S., Claßen, M., Ballauff, A., Peplies, J. & Timmer, A. (2018). School-related experience and performance with inflammatory bowel disease: results from a cross-sectional survey in 675 children and their parents. BMJ open gastroenterology, 5(1), https://doi.org/10.1136/bmjgast-2018-000236
Gannoni, A. F., & Shute, R. H. (2009). Parental and child perspectives on adaptation to childhood chronic illness: A qualitative study. Clinical Child Psychology and Psychiatry, 15(1), 39–53. https://doi.org/10.1177/1359104509338432
Geist, R., Grdisa, V., & Otley, A. (2003). Psychosocial issues in the child with chronic conditions. Best Practice & Research Clinical Gastroenterology, 17(2), 141-152. https://doi.org/10.1016/S1521-6918(02)00142-7
Gentile, D. A., Morphew, T., Elliott, J., Presto, A. A., & Skoner, D. P. (2022). Asthma prevalence and control among schoolchildren residing near outdoor air pollution sites. Journal of Asthma, 59(1), 12-22. https://doi.org/10.1080/02770903.2020.1840584
Gidman, J., McIntosh, A., Melling, K., & Smith, D. (2011). Student perceptions of support in practice. Nurse education in practice, 11(6), 351-355. https://doi.org/10.1016/j.nepr.2011.03.005
Gizli Çoban, Ö., Bedel, A., Önder, A., Sürer Adanır, A., Tuhan, H., & Parlak, M. (2022). Psychiatric disorders and peer-victimization in children and adolescents with growth hormone deficiency. Clinical pediatrics, 61(10), 684-691. https://doi.org/10.1177/00099228221096654
Goldstein, H., Akré, C., Bélanger, R. E., & Suris, J. C. (2013). Detached, distraught or discerning? Fathers of adolescents with chronic illness: a review of the literature. International Journal of Adolescent Medicine and Health, 25(2), 109-117. https://doi.org/10.1515/ijamh-2013-0018
Grinyer, A. (2007). The biographical impact of teenage and adolescent cancer. Chronic illness, 3(4), 265-277. https://doi.org/10.1177/1742395307085335
Gupta, R. S., Warren, C. M., Smith, B. M., Blumenstock, J. A., Jiang, J., Davis, M. M., & Nadeau, K. C. (2018). The Public Health Impact of Parent-Reported Childhood Food Allergies in the United States. Pediatrics, 142(6). https://doi.org/10.1542/peds.2018-1235
Gupta, R. S., Warren, C. M., Smith, B. M., Blumenstock, J. A., Jiang, J., Davis, M. M., & Nadeau, K. C. (2018). The public health impact of parent-reported childhood food allergies in the United States. Pediatrics, 142(6). https://doi.org/10.1542/peds.2018-1235
Hamlet, H. S., & Herrick, M. A. (2011). Who’s on first: Professional collaboration and children with chronic illness. Alexandria: American Counseling Association, 1-11. http://counselingoutfitters.com/
Hamlet, H. S., Gergar, P. G., & Schaefer, B. A. (2011). Students living with chronic illness: The school counselor's role. Professional School Counseling, 14(3), 2156759X1101400304. https://doi.org/10.1177/2156759X1101400304
Hanas, R. (2007). Type 1 diabetes in children, adolescents, and young adults: how to become an expert on your own diabetes. Class Publishing Ltd.
Hansen, J. A., Weissbrod, C., Schwartz, D. D., & Taylor, W. P. (2012). Paternal involvement in pediatric Type 1 diabetes: Fathers' and mothers' psychological functioning and disease management. Families, Systems, & Health, 30(1), 47–59. https://doi.org/10.1037/a0027519
Hapunda, G., Abubakar, A., Van de Vijver, F. (2017). Applying the bioecological model to understand factors contributing to psychosocial well-being and healthcare of children and adolescents with diabetes mellitus. South African Journal of Diabetes and Vascular Disease, 14(1), 11-17. https://hdl.handle.net/10520/EJC-94d31a9cf
Harkonen, U. (2007, October 17). The Bronfenbenner ecological system theory of human development. Scientific Articles of V International Conference Daugavpils University, Latvia, 1 – 17.
Haspolat, Y. K., Uluca, Ü., Aktar, F., Yolbaş, İ. (Ed.). (2016). Adolesanda büyüme ve puberte. Cinius Yayınları.
Hocking, M. C., Paltin, I., Belasco, C., & Barakat, L. P. (2018). Parent perspectives on the educational barriers and unmet needs of children with cancer. Children's Health Care, 47(3), 261-274. https://doi.org/10.1080/02739615.2017.1337516
Hokkanen, H., Eriksson, E., Ahonen, O., & Salantera, S. (2004). Adolescents with cancer: experience of life and how it could be made easier. Cancer nursing, 27(4), 325–335. https://doi.org/10.1097/00002820-200407000-00010
Hotchkiss, J. M. (2015). School reintegration for students with chronic illnesses: A school counseling perspective [Doctoral dissertation]. North Dakota State University. https://www.proquest.com/dissertations-theses/school-reintegration-students-with-chronic/docview/1684659690/se-2
Iannucci, J., & Nierenberg, B. (2022). Suicide and suicidality in children and adolescents with chronic illness: A systematic review. Aggression and violent behavior, 64, 101581. https://doi.org/10.1016/j.avb.2021.101581
Ibrahim, N., Hassler, C., Jousselme, C., Barry, C., Lefèvre, H., Falissard, B., Bouyer, J. & Rouquette, A. (2023). Chronic conditions, subjective wellbeing and risky sexual behaviour among adolescents and young adults. European Journal of Pediatrics, 182(3), 1163-1171. https://doi.org/10.1007/s00431-022-04784-2
International Diabetes Federation (2021). IDF Diabetes Atlas, 10th ed. Brussels, Belgium. https://www.diabetesatlas.org
International Diabetes Federation. (2022). Type 1 diabetes. https://idf.org/about-diabetes/type-1-diabetes/
Irwin, M. R. (2013). Depression and insomnia in cancer: prevalence, risk factors, and effects on cancer outcomes. Current psychiatry reports, 15, 1-9. https://doi.org/10.1007/s11920-013-0404-1
Işık, Ş. (Ed.). (2021). Eğitim Psikolojisi. Pegem Akademi.
Jaser, S. S., & White, L. E. (2011). Coping and resilience in adolescents with type 1 diabetes. Child: care, health, and development, 37(3), 335-342. https://doi.org/10.1111/j.1365-2214.2010.01184.x
Jeffery, L. (2023). Supporting Children and Young People with Chronic Illness in their educational setting: Considering the role of the Educational Psychologist [Doctoral dissertation]. University of Exeter. http://hdl.handle.net/10871/133971
Jones, R. L. (2022). The experiences of families of Children and Young People with chronic illness within education [Doctoral dissertation]. Cardiff University.
Judson, L. (2004). Global childhood chronic illness. Nursing administration quarterly, 28(1), 60-66.
Juth, V., Smyth, J. M., & Santuzzi, A. M. (2008). How do you feel? Self-esteem predicts affect, stress, social interaction, and symptom severity during daily life in patients with chronic illness. Journal of health psychology, 13(7), 884-894. https://doi.org/10.1177/1359105308095062
Kaffenberger, C. J. (2006). School reentry for students with a chronic illness: A role for professional school counselors. Professional School Counseling, 223-230. http://www.jstor.org/stable/42732674
Katz, S., & Krulik, T. (1999). Fathers of children with chronic illness: do they differ from fathers of healthy children?. Journal of Family Nursing, 5(3), 292-315. https://doi.org/10.1177/107484079900500304
Khandan, M., Abazari, F., Tirgari, B., & Cheraghi, M. A. (2018). Lived experiences of mothers with diabetic children from the transfer of caring role. International journal of community based nursing and midwifery, 6(1), 76. PMID: 29344538
Kise, S. S., Hopkins, A., & Burke, S. (2017). Improving school experiences for adolescents with type 1 diabetes. Journal of School Health, 87(5), 363-375. https://doi.org/10.1111/josh.12507
Kish, A. M., Newcombe, P. A., & Haslam, D. M. (2018). Working and caring for a child with chronic illness: A review of current literature. Child: care, health and development, 44(3), 343-354. https://doi.org/10.1111/cch.12546
Knafl, K., & Zoeller, L. (2000). Childhood chronic illness: A comparison of mothers’ and fathers’ experiences. Journal of Family Nursing, 6(3), 287-302. https://doi.org/10.1177/107484070000600306
Kogon, A. J., & Hooper, S. R. (2023). Mental health and social-emotional functioning in children and adolescents with chronic kidney disease. Pediatric Nephrology, 1-17. https://doi.org/10.1007/s00467-023-06151-1
Kouzegaran, S., Samimi, P., Ahanchian, H., Khoshkhui, M., & Behmanesh, F. (2018). Quality of Life in Children with Asthma versus Healthy Children. Open access Macedonian journal of medical sciences, 6(8), 1413–1418. https://doi.org/10.3889/oamjms.2018.287
Krishnan, V. (2010, May). Early child development: A conceptual model. In early childhood council annual conference (s. 1-17). Edmonton, AB, Canada: University of Alberta.
Kurul, S. (2016). Çocukluk çağı epilepsisinde yeni tanısal yaklaşımlar: genetik alanındaki gelişmeler neyi değiştirdi?. Türkiye Klinikleri Journal of Pediatrics, 25(1):34-51
doi:10.5336/pediatr.2015-48619
Lanin, D. M. (2014). Serving the Student-Survivor: Exploring the Transitional and Psychosocial Needs of School-Aged Children with Cancer and Chronic Illness [Master’s thesis]. Dominican University of California. https://files.eric.ed.gov/fulltext/ED546456.pdf
Larsen, P. (2012). Chronicity. I. M. Lubkin, P. D. Larsen (Ed.), Chronic illness impact and intervention (8. Baskı, s. 3-20) içinde. Jones & Bartlett Publishers.
Layte, R., & McCrory, C. (2013). Paediatric chronic illness and educational failure: the role of emotional and behavioural problems. Social Psychiatry and Psychiatric Epidemiology, 48, 1307-1316. https://doi.org/10.1007/s00127-012-0609-3
LeBlanc, L. A., Goldsmith, T., & Patel, D. R. (2003). Behavioral aspects of chronic illness in children and adolescents. Pediatric Clinics, 50(4), 859-878. https://doi.org/10.1016/S0031-3955(03)00072-5
Lizzo, J. M., & Cortes, S. (2022). Pediatric Asthma. [8 Mayıs 2022]. Treasure Island (FL): StatPearls Publishing.
Lozier, M. J., Zahran, H. S., & Bailey, C. M. (2019). Assessing health outcomes, quality of life, and healthcare use among school-age children with asthma. Journal of Asthma, 56(1), 42-49. https://doi.org/10.1080/02770903.2018.1426767
Lum, A., Wakefield, C. E., Donnan, B., Burns, M. A., Fardell, J. E., & Marshall, G. M. (2017). Understanding the school experiences of children and adolescents with serious chronic illness: A systematic meta‐review. Child: care, health and development, 43(5), 645-662. https://doi.org/10.1111/cch.12475
Lum, A., Wakefield, C. E., Donnan, B., Burns, M. A., Fardell, J. E., Jaffe, A., Kasparian, N. A., Kennedy, S. E., Leach, S. T., Lemberg, D. A., & Marshall, G. M. (2019). School students with chronic illness have unmet academic, social, and emotional school needs. School Psychology, 34(6), 627–636. https://doi.org/10.1037/spq0000311
Maes, S., Leventhal, H., De Ridder, T. D. D. (1996). Coping with chronic diseases. M. Zeidner, N. S. Endler (Ed.), Handbook of coping theory, research, applications (s. 221-251) içinde. John Wiley & Sons, Inc.
Mariyana, R., & Betriana, F. (2021). “I checked her while she was sleeping just to make sure she was still alive”: a qualitative study of parents and caregivers of children with chronic disease in Indonesia. Journal of pediatric nursing, 59, e7-e12. https://doi.org/10.1016/j.pedn.2021.01.014
Marks, A., Wilson, V., & Crisp, J. (2013). The management of type 1 diabetes in primary school: review of the literature. Issues in comprehensive pediatric nursing, 36(1-2), 98-119. https://doi.org/10.3109/01460862.2013.782079
Marks, A., Wilson, V., & Crisp, J. (2013). The management of type 1 diabetes in primary school: review of the literature. Issues in comprehensive pediatric nursing, 36(1-2), 98-119. https://doi.org/10.3109/01460862.2013.782079
Marotz, L. R. (2011). Health, Safety and Nutrition fort he Young Child. [8th ed.]. Wadsworth Cengage Leraning.
Martinez‐Santos, A. E., Fernandez‐De‐La‐Iglesia, J. D. C., Sheaf, G., & Coyne, I. (2021). A systematic review of the educational experiences and needs of children with cancer returning to school. Journal of Advanced Nursing, 77(7), 2971-2994. https://doi.org/10.1111/jan.14784
Maslow, A. H. (1943). A theory of human motivation. Psychological review, 50(4), 370.
Matlock, K. A., Jones, N. H. Y., Corathers, S. D., & Kichler, J. C. (2017). Clinical and psychosocial factors associated with suicidal ideation in adolescents with type 1 diabetes. Journal of Adolescent Health, 61(4), 471-477. https://doi.org/10.1016/j.jadohealth.2017.05.004
Meyer, S., & Lamash, L. (2021). Illness Identity and the Relationship With Participation and Quality of Life Among Adolescents With Celiac Disease. American Journal of Occupational Therapy, 75. https://doi.org/10.5014/ajot.2021.75S2-RP195
Milbourne, L., Macrae, S., & Maguire, M. (2003). Collaborative solutions or new policy problems: exploring multi-agency partnerships in education and health work. Journal of Education Policy, 18(1), 19-35. https://doi.org/10.1080/268093032000042182
Miller S. (2003). Analysis of phenomenological data generated with children as research participants. Nurse researcher, 10(4), 68–82. https://doi.org/10.7748/nr2003.07.10.4.68.c5908
Millî Eğitim Bakanlığı Rehberlik ve Psikolojik Danışma Hizmetleri Yönetmeliği (2020). Resmî Gazete 31213 (14 Ağustos 2020). https://www.resmigazete.gov.tr/eskiler/2020/08/20200814-2.htm
Mitchell, R. J., McMaugh, A., Homaira, N., Lystad, R. P., Badgery‐Parker, T., & Cameron, C. M. (2022). The impact of childhood asthma on academic performance: A matched population‐based cohort study. Clinical & Experimental Allergy, 52(2), 286-296. https://doi.org/10.1111/cea.14022
Moustakas, C. (1994). Phenomenological research methods. SAGE Publications.
Muraro, A., Clark, A., Beyer, K., Borrego, L. M., Borres, M., Lødrup Carlsen, K. C., Carrer, P., Mazon, A., Rancè, F., Valovirta, E., Wickman, M., & Zanchetti, M. (2010). The management of the allergic child at school: EAACI/GA2LEN Task Force on the allergic child at school. Allergy, 65(6), 681–689. https://doi.org/10.1111/j.1398-9995.2010.02343.x
Nabors, L. A., Kichler, J. C., Brassell, A., Thakkar, S., Bartz, J., Pangallo, J., Van Wassenhove, B., & Lundy, H. (2013). Factors related to caregiver state anxiety and coping with a child’s chronic illness. Families, Systems, & Health, 31(2), 171–180. https://doi.org/10.1037/a0031240
Nasuuna, E., Santoro, G., Kremer, P., & de Silva, A. M. (2016). Examining the relationship between childhood health conditions and health service utilisation at school entry and subsequent academic performance in a large cohort of Australian children. Journal of Paediatrics and Child Health, 52(7), 750-758. https://doi.org/10.1111/jpc.13183
National Center for Chronic Disease Prevention and Health Promotion (2022). Chronic disease data. https://www.cdc.gov/chronicdisease/data/indicators.htm
National Health Service, (2021). Symptoms and getting diagnosed type 1 diabetes. https://www.nhs.uk/conditions/type-1-diabetes/about-type-1-diabetes/symptoms-and-getting-diagnosed/
National Health Service, (2021). Asthma. https://www.nhs.uk/conditions/asthma/
National Health Service, (2022). Food allergy. https://www.nhs.uk/conditions/food-allergy/
National Health Service, (2023). Epilepsy. https://www.nhs.uk/conditions/epilepsy/
Noncommunicable Diseases Progress Monitor 2022. World Health Organization 2022. https://www.who.int/publications/i/item/9789240047761
Nordling, E., Berglind, N., Melén, E., Emenius, G., Hallberg, J., Nyberg, F., Pershagen, G., Svartengren, M., Wickman, M. & Bellander, T. (2008). Traffic-related air pollution and childhood respiratory symptoms, function and allergies. Epidemiology, 19(3), 401-408. https://doi.org/10.1097/EDE.0b013e31816a1ce3
Norman, R. A., & Ruescher, L. (2009). 100 Questions & Answers About Chronic Illness. Jones & Bartlett Learning.
O'Connor, M., Rosema, S., Quach, J., Kvalsvig, A. and Goldfeld, S. (2016). Parent and teacher perceptions of emerging special health care needs. J Paediatr Child Health, 52. 950- 956. https://doi.org/10.1111/jpc.13188
Oleś, M. (2015). Resilience and quality of life in chronically ill youth. Health Psychology Report, 3(3), 220-236. https://doi.org/10.5114/hpr.2015.53246
Oris, L., Luyckx, K., Rassart, J., Goubert, L., Goossens, E., Apers, S., Arat, S., Vandenberghe, J., Westhovens, R. & Moons, P. (2018). Illness identity in adults with a chronic illness. Journal of clinical psychology in medical settings, 25, 429-440. https://doi.org/10.1007/s10880-018-9552-0
Özel Eğitim Hizmetleri Yönetmeliği, (2018). Resmî Gazete 30471 (7 Temmuz 2018). https://www.mevzuat.gov.tr/mevzuat?MevzuatNo=24736&MevzuatTur=7&MevzuatTertip=5
Parette, H. P., & Holder-Brown, L. (1992). the role of the school counselor in providing services to medically fragile children. Elementary School Guidance & Counseling, 27(1), 47–55. http://www.jstor.org/stable/42869043
Patton, M. Q. (2018). Nitel Araştırma ve Değerlendirme Yöntemleri, (Çeviri Ed: Bütün, M. & Demir, S.B.). 2. Baskı, Ankara: Pegem Akademi.
Patton, M. Q. (2018). Nitel araştırma ve değerlendirme yöntemleri (2. Baskı). (M. Bütün, S. B. Demir, Çev. Ed.). Pegem Akademi (Orijinal eserin basım tarihi 2002, 3.Baskı).
Pederson, C. L., Yontz, B. D., & Cochran, H. A. (2021). What Chronically Ill Students Need From Their Schools. Kappa Delta Pi Record, 57(2), 75-79. https://doi.org/10.1080/00228958.2021.1890443
Perrin, E. C., & Gerrity, P. S. (1984). Development of children with a chronic illness. Pediatric Clinics of North America, 31(1), 19-31. https://doi.org/10.1016/s0031-3955(16)34533-3
Pinquart, M. (2013). Self‐esteem of children and adolescents with chronic illness: a meta‐analysis. Child: care, health and development, 39(2), 153-161. https://doi.org/10.1111/j.1365-2214.2012.01397.x
Pinquart, M. (2017). Systematic review: bullying involvement of children with and without chronic physical illness and/or physical/sensory disability—a meta-analytic comparison with healthy/nondisabled peers. Journal of pediatric psychology, 42(3), 245-259. https://doi.org/10.1093/jpepsy/jsw081
Pinquart, M., Shen, Y. (2011). Behavior problems in children and adolescents with chronic physical illness: A meta-analysis, Journal of Pediatric Psychology, 36(9), 1003–1016. https://doi.org/10.1093/jpepsy/jsr042
Pittet, I., Berchtold, A., Akré, C., Michaud, P. A., & Suris, J. C. (2010). Are adolescents with chronic conditions particularly at risk for bullying?. Archives of disease in childhood, 95(9), 711-716. https://doi.org/10.1136/adc.2008.146571
Prevatt, F. F., Heffer, R. W., & Lowe, P. A. (2000). A review of school reintegration programs for children with cancer. Journal of School Psychology, 38(5), 447-467. https://doi.org/10.1016/S0022-4405(00)00046-7
Rechenberg, K., Szalacha, L., Salloum, A., & Grey, M. (2019). State and trait anxiety and diabetes outcomes in youth with type 1 diabetes. The Diabetes Educator, 45(5),1-7. https://doi.org/10.1177/0145721719866146
Renz, H., & Skevaki, C. (2021). Early life microbial exposures and allergy risks: opportunities for prevention. Nature Reviews Immunology, 21(3), 177-191. https://doi.org/10.1038/s41577-020-00420-y
Rewers, M., & Ludvigsson, J. (2016). Environmental risk factors for type 1 diabetes. The Lancet, 387(10035), 2340-2348. https://doi.org/10.1016/S0140-6736(16)30507-4
Roder, I., & Boekaerts, M. (1999). Stress, coping, and adjustment in children with a chronic disease: a review of the literature. Disability and Rehabilitation, 21(7), 311–337. https://doi.org/10.1080/096382899297576
Rogers, M. A., Kim, C., Banerjee, T., & Lee, J. M. (2017). Fluctuations in the incidence of type 1 diabetes in the United States from 2001 to 2015: a longitudinal study. BMC Medicine, 15, 1-9. https://doi.org/10.1186/s12916-017-0958-6
Romo, D. (2015). A Bioecological Model of Grief Recovery : Theory and Test of the Model [Doctoral Dissertation, Oregon State University].
Royer, A. (1998). Life with chronic illness: Social and psychological dimensions. Bloomsbury Publishing USA.
Runions, K. C., Vithiatharan, R., Hancock, K., Lin, A., Brennan-Jones, C. G., Gray, C., & Payne, D. (2019). Chronic health conditions, mental health and the school: A narrative review. Health Education Journal, 79(4), 471-483. https://doi.org/10.1177/0017896919890898
Sakarya, N. (2003). Rehber öğretmenlerin ve sınıf öğretmenlerinin kronik hastalığı olan öğrencilerle ilgili yaklaşımları: bilgi kaynakları, bilgi düzeyleri, tutumları. [Yayımlanmamış yüksek lisans tezi]. Anadolu Üniversitesi.
Santos, T., Ferreira, M., Simões, M. C., Machado, M. C., & de Matos, M. G. (2014). Chronic condition and risk behaviours in Portuguese adolescents. Global journal of health science, 6(2), 227–236. https://doi.org/10.5539/gjhs.v6n2p227
Sawyer, S. M., Drew, S., Yeo, M. S., & Britto, M. T. (2007). Adolescents with a chronic condition: challenges living, challenges treating. The Lancet, 369(9571), 1481-1489. https://doi.org/10.1016/S0140-6736(07)60370-5
Scholte, R. H., & Van Aken, M. A. (2020). Peer relations in adolescence. Handbook of adolescent development (ss. 175-199) içinde. Psychology Press.
Schwartz, S. J., Zamboanga, B. L., Luyckx, K., Meca, A., & Ritchie, R. A. (2013). Identity in emerging adulthood: Reviewing the field and looking forward. Emerging adulthood, 1(2), 96-113. https://doi.org/10.1177/2167696813479781
Selekman, J. (2017). Students with chronic conditions: Experiences and challenges of regular education teachers. The Journal of School Nursing, 33(4), 307-315. https://doi.org/10.1177/1059840516674053
Sentenac, M., Arnaud, C., Gavin, A., Molcho, M., Gabhainn, S. N., & Godeau, E. (2012). Peer victimization among school-aged children with chronic conditions. Epidemiologic reviews, 34(1), 120-128. https://doi.org/10.1093/epirev/mxr024
Sentenac, M., Gavin, A., Arnaud, C., Molcho, M., Godeau, E., & Gabhainn, S. N. (2011). Victims of bullying among students with a disability or chronic illness and their peers: a cross-national study between Ireland and France. Journal of Adolescent Health, 48(5), 461-466. https://doi.org/10.1016/j.jadohealth.2010.07.031
Sentenac, M., Santos, T., Augustine, L., Michelsen, S. I., Movsesyan, Y., Ng, K., Małkowska-Szkutnik, A. & Godeau, E. (2023). Chronic health conditions and school experience in school-aged children in 19 European countries. European Child & Adolescent Psychiatry, 32(9), 1711-1721. https://doi.org/10.1007/s00787-022-01987-8
Sexson, S. B., & Madan-Swain, A. (1993). School reentry for the child with chronic illness. Journal of learning disabilities, 26(2), 115-137. https://doi.org/10.1177/002221949302600204
Shanahan, L., Zucker, N., Copeland, W. E., Costello, E. J., & Angold, A. (2014). Are children and adolescents with food allergies at increased risk for psychopathology?. Journal of psychosomatic research, 77(6), 468-473. https://doi.org/10.1016/j.jpsychores.2014.10.005
Shiu, S. (2001). Issues in the education of students with chronic illness. International journal of disability, development and education, 48(3), 269-281. https://doi.org/10.1080/10349120120073412
Shiu, S. (2008). Achieving equity in educational outcomes for students with chronic illness [Doctoral dissertation, University of Western Sydney] Australia. http://handle.uws.edu.au:8081/1959.7/19222
Sicherer, S. H., Mahr, T., & Section on Allergy and Immunology. (2010). Management of food allergy in the school setting. Pediatrics, 126(6), 1232-1239. https://doi.org/10.1542/peds.2010-2575
Sikorová, L., & Strakošová, T. (2023). Posttraumatic growth in children and adolescents with type 1 diabetes. Pielegniarstwo XXI wieku/Nursing in the 21st Century, 21(3), 158-162. https://doi.org/10.2478/pielxxiw-2022-0024
Silva, M. E. D. A., Moura, F. M. D., Albuquerque, T. M., Reichert, A. P. D. S., & Collet, N. (2017). Network and social support in children with chronic diseases: understanding the child's perception. Texto & Contexto-Enfermagem, 26, e6980015. https://doi.org/10.1590/0104-07072017006980015
Smith, J. A. (2004). Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology. Qualitative research in psychology, 1(1), 39-54. https://doi.org/10.1191/1478088704qp004oa
Smith, J. A., Flowers, P., Larkin, M. (2009). Interpretative phenomenological analysis theory, method and research (1. Baskı). SAGE Publications Inc.
Smith, J., & Dunworth, F. (2003). Qualitative methodology. J. Valsiner, K. Connoly (Ed.), Handbook of developmental psychology (s. 603-621) içinde. SAGE Publications Inc.
Staniec, E. A. (2021). Childhood Chronic Illness: How Does It Affect the Future Career Goals of the Individual? [Doctoral dissertation]. East Carolina University. https://www.proquest.com/dissertations-theses/childhood-chronic-illness-how-does-affect-future/docview/2598070551/se-2
Stavrou, S., & Demetriou, L. (2021). Views of Parents and Teachers on Ways to Improve the Primary School’s Response to Children with Chronic Diseases. Psychology, 11(2), 74-86. doi:10.17265/2159-5542/2021.02.005
Studer, J. R., & Quigney, T. A. (2005). The need to integrate more special education content into pre-service preparation programs for school counselors. Guidance & Counseling, 20(2), 56-63.
Swartz, D. R. (1984). Dealing with Chronic Illness in Childhood. Pediatrics in Review, 6(3), 67–73. doi:10.1542/pir.6-3-67
T.C. Millî Eğitim Bakanlığı Rehberlik ve Psikolojik Danışma Hizmetleri Yönetmeliği, (2020). Resmî Gazete 31213 (14 Ağustos 2020). https://www.resmigazete.gov.tr/eskiler/2020/08/20200814-2.htm
T.C. Sağlık Bakanlığı, (2018). Sağlık İstatistikleri Yıllığı 2018. https://hsgm.saglik.gov.tr/depo/birimler/kronik-hastaliklar-ve-yasli-sagligi-db/Dokumanlar/Raporlar/Saglik_Istatistikleri_Yilligi_2018.pdf
Tarı, S., & Kitiş, Y. (2016). Difficulties of Type 1 diabetic children related to the management of diabetes at schools. Journal of Ege University Nursing Faculty, 32(2), 44-60.
The Global Asthma Report, (2022). The International Journal of Tuberculosis and Lung Disease, 26, 1-102. http://dx.doi.org/10.5588/ijtld.22.1010
The Lancet, (2019). Global burden of disease. https://www.thelancet.com/pb-assets/Lancet/gbd/summaries/diseases/epilepsy-impairment.pdf
Thies, K. M. (1999). Identifying the educational implications of chronic illness in school children. Journal of school health, 69(10), 392-397. https://doi.org/10.1111/j.1746-1561.1999.tb06354.x
Toyran, M., & Kocabaş, C. N. (2014). Okul ve Allerjik Hastalığı Olan Çocuk. Journal of Pediatric Disease/Cocuk Hastaliklari Dergisi, 8(4). DOI: 10.12956/tjpd.2014.54
Toyran, M., Yagmur, I. T., Guvenir, H., Haci, I. A., Bahceci, S., Batmaz, S. B., Topal, O. Y., Celik, I. K., Karaatmaca, B., Misirlioglu, E. D., Civelek, E., Can, D. & Kocabas, C. N. (2020). Asthma control affects school absence, achievement and quality of school life: a multicenter study. Allergologia et Immunopathologia, 48(6), 545-552. https://doi.org/10.1016/j.aller.2020.05.005
Törüner, E. K, Büyükgönenç, L. (2012). Çocuk sağlığı-temel hemşirelik yaklaşımları. Göktuğ Yayıncılık. 472-497.
Tuttle, M., Land, C., & Moss, L. (2017). Counseling Children in School and Clinical Mental Health Settings. Counseling Children and Adolescents içinde (s. 21-35). Routledge.
Türkiye Cumhuriyeti Aile ve Sosyal Hizmetler Bakanlığı. (2022). Engelli ve yaşlı istatistik bülteni (Ulusal engelli veri sistemi). https://www.aile.gov.tr/media/108892/eyhgm_istatistik_bulteni_nisan2022.pdf
Türkiye Cumhuriyeti Millî Eğitim Bakanlığı [MEB], (2022). Eğitsel değerlendirme ve tanılama nedir? https://orgm.meb.gov.tr/www/egitsel-degerlendirme-ve-tanilama-nedir/icerik/1941
Türkiye İstatistik Kurumu [TÜİK], (2019). Türkiye sağlık araştırması raporu. Turkiye%20saglik%20arastirmasi%202019%20raporu.pdf
Üzbe Atalay, N. (2021). Fiziksel Gelişim. Ş. Işık (Ed.), Eğitim Psikolojisi içinde (s. 48-79). Pegem Akademi.
Van Cleave, J., & Davis, M. M. (2006). Bullying and peer victimization among children with special health care needs. Pediatrics, 118(4), e1212-e1219. https://doi.org/10.1542/peds.2005-3034
Van Manen, M. (2016). Researching lived experience human science for an action sensitive pedagogy (2. Baskı). Routledge.
Vanclooster, S., Van Hoeck, K., Peremans, L., Bilsen, J., Van Der Werff Ten Bosch, J., Laureys, G., Paquier, P., & Jansen, A. (2021). Reintegration into school of childhood brain tumor survivors: a qualitative study using the International Classification of Functioning, Disability and Health – Children and Youth framework. Disability and rehabilitation, 43(18), 2610-2620. https://doi.org/10.1080/09638288.2019.1708484
Vitulano, L. A. (2003). Psychosocial issues for children and adolescents with chronic illness: self-esteem, school functioning and sports participation. Child and adolescent psychiatric clinics of North America, 12(3), 585-592. https://doi.org/10.1016/s1056-4993(03)00027-0
Voth, J., & Sirois, F. M. (2009). The role of self-blame and responsibility in adjustment to inflammatory bowel disease. Rehabilitation psychology, 54(1), 99. https://doi.org/10.1037/a0014739
Vranda, M. N., & Mothi, S. N. (2013). Psychosocial issues of children infected with HIV/AIDS. Indian journal of psychological medicine, 35(1), 19-22. 10.4103/0253-7176.112195
Waine, J. (2021). Chronic Health Conditions and Mental Well-Being in Children and Young People. In Child and Adolescent Mental Health (pp. 154-160). CRC Press.
Walker, D. K., & Jacobs, F. H. (1984). Chronically ill children in school. Peabody Journal of Education, 61(2), 28-74. https://doi.org/10.1080/01619568409538437
Wang, D. Y. (2005). Risk factors of allergic rhinitis: genetic or environmental?. Therapeutics and clinical risk management, 1(2), 115-123. https://doi.org/10.2147/tcrm.s1211562907
Warren, N. C. (1982). The role of the school counselor in helping chronically ill students. Graduate Research Papers. 3481. https://scholarworks.uni.edu/grp/3481
Wei, S. H., & Lee, W. T. (2015). Comorbidity of childhood epilepsy. Journal of the Formosan Medical Association, 114(11), 1031-1038. https://doi.org/10.1016/j.jfma.2015.07.015
Wentzel, K. R., & Caldwell, K. (1997). Friendships, peer acceptance, and group membership: Relations to academic achievement in middle school. Child development, 1198-1209. https://doi.org/10.2307/1132301
West, A. M., Denzer, A. Q., Wildman, B. G., & Anhalt, K. (2013). Teacher perception of burden and willingness to accommodate children with chronic health conditions. Advances in School Mental Health Promotion, 6(1), 35-50. https://doi.org/10.1080/1754730X.2012.760920
Willig, C. (2021). Phenomenological methods. Introducing Qualitative Research in Psychology (4. Baskı, s. 95-115) içinde. Open University Press.
Yardley, L. (2017). Demonstrating the validity of qualitative research. The journal of positive psychology, 12(3), 295-296. https://doi.org/10.1080/17439760.2016.1262624
Yeşilyurt, F. (2019). Rehber Öğretmenlerin Epilepsiye İlişkin Bilgi ve Davranışlarının İncelenmesi. Epilepsi, 25(3):141-146. 10.14744/epilepsi.2019.65265
Yıldırım, A. ve Şimşek, H. (2021). Sosyal bilimlerde nitel araştırma yöntemleri (12. Baskı). Seçkin Yayıncılık.
Yıldız-Çoksan, S., Aslan, A., Çoksan, S., & Okuyaz, Ç. (2019). Cognitive profile and academic achievement of children with absence epilepsy. Epilepsy & Behavior, 95, 95-99. https://doi.org/10.1016/j.yebeh.2019.04.001
Yılmaz Bolat, E. (2018). Süreğen hastaliği olan çocuklar ve hastane okullari. Milli Eğitim Dergisi, 47(218), 163-186.
