Beslenme Korkusu Anketi - Ebeveyn Raporu'nun Geliştirilmesi ve Ebeveynlerin Besleme Korkusu Şiddeti ile İlişkili Olan Faktörlerin Belirlenmesi

Abstract

The aim of this study is to develop the questionnaire called Fear of Feeding Questionnaire-Parental Report (FFQ-PR), which measures the fears of parents of children with neurological disorders about feeding their children, to determine the content, criterion and discriminant validity, and internal consistency and test-retest reliability of the questionnaire, and to determine the factors associated with the severity of parents' fear of feeding their child. In our study, children with neurological disorders with a mean age of 84.06±28.07 months and their parents (n=90) as study group, and typical developing children with a mean age of 92.20±30.06 months and their parents (n=60) as control group were included. In the creation of the FFQ-PR item pool, literature, clinical experience and parental notifications were used. Content validity was calculated with the 'Content Validity Index' in line with expert opinions. Cronbach's α coefficient was used for internal consistency, the relationship between the FFQ-PR scores answered by the parents in the study group with a 1-week interval was examined for test-retest reliability. For criterion validity, the relationship between FFQ-PR scores and Nordic Orofacial Screening Test, Dysphagia Disorder Survey (DDS), dysphagia limit and Feeding /Swallowing Impact Survey (Turkish version of Feeding/Swallowing Impact Survey, T-FS-IS) scores, for discriminant validity, the score distributions between groups were examined. A 'Stepwise multiple linear regression model' was used to determine the factors associated with the severity of the fear of feeding. The 'Content Validity Index' of FFQ-PR was determined as 0.92. The Cronbach's α value was found to be high with 0.966 for test and 0.969 for retest. There was a low-moderate relationship between BKA-ER scores and swallowing performance of children (r=0.362-0.55, p<0.001), and a moderate-high relationship between BKA-ER scores and T-FS-IS scores (r=0.501-0.807, p<0.001). A significant difference was found between groups in terms of FFQ-PR scores (p=0.001). As a result of the regression model, a significant correlation was found between BKA- ER scores and child age, transition time to solid food, weight loss, DDS score, worry and feeding difficulties scores of T-FS-IS and parental anxiety levels (p<0,05). As a result of the study, a valid and reliable assessment tool called FFQ-PR has been developed that assesses parents' fears about feeding their children. It was determined that the severity of the fear of feeding increased in those who had a younger child, as the transition to solid food was delayed, as the weight loss, swallowing disorder severity, and parental anxiety and anxiety levels increased. This study provided a questionnaire that could be used to further involve parents in the assessment phase. In addition, by determining the factors related to the fear of feeding, the parameters that should be emphasized in the rehabilitation process were revealed.