Hemofili Hastalarının Bakıcı Üzerindeki Yükünün Araştırılması

Abstract

In this study we found that, the frequency of bleeding episodes increases the fear on the caregivers, any history of bleeding in the past 12 months had an effect on the social life of the caregivers and family history of haemophilia had strain on the caregivers. İt can be concluded that during follow up of a haemophilia patient with a frequent history of bleeding, family history of haemophilia and bleeding episode in the past 12 months, the caregiver can be emotionally affected and support should be provided to these caregivers. By doing the same study with a large population might yield a more significant results