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dc.contributor.authorGossec, Laure
dc.contributor.authorde Wit, Maarten
dc.contributor.authorKiltz, Uta
dc.contributor.authorBraun, Juergen
dc.contributor.authorKalyoncu, Umut
dc.contributor.authorScrivo, Rossana
dc.contributor.authorMaccarone, Mara
dc.contributor.authorCarton, Laurence
dc.contributor.authorOtsa, Kati
dc.contributor.authorSooaeaer, Imre
dc.contributor.authorHeiberg, Turid
dc.contributor.authorBertheussen, Heidi
dc.contributor.authorCanete, Juan D.
dc.contributor.authorLombarte, Anselm Sanchez
dc.contributor.authorBalanescu, Andra
dc.contributor.authorDinte, Alina
dc.contributor.authorde Vlam, Kurt
dc.contributor.authorSmolen, Josef S.
dc.contributor.authorStamm, Tanja
dc.contributor.authorNiedermayer, Dora
dc.contributor.authorBekes, Gabor
dc.contributor.authorVeale, Douglas
dc.contributor.authorHelliwell, Philip
dc.contributor.authorParkinson, Andrew
dc.contributor.authorLuger, Thomas
dc.contributor.authorKvien, Tore K.
dc.date.accessioned2019-12-10T11:10:05Z
dc.date.available2019-12-10T11:10:05Z
dc.date.issued2014
dc.identifier.issn0003-4967
dc.identifier.urihttps://doi.org/10.1136/annrheumdis-2014-205207
dc.identifier.urihttp://hdl.handle.net/11655/14809
dc.description.abstractIntroduction The objective was to develop a questionnaire that can be used to calculate a score reflecting the impact of psoriatic arthritis (PsA) from the patients' perspective: the PsA Impact of Disease (PsAID) questionnaire. Methods Twelve patient research partners identified important domains (areas of health); 139 patients prioritised them according to importance. Numeric rating scale (NRS) questions were developed, one for each domain. To combine the domains into a single score, relative weights were determined based on the relative importance given by 474 patients with PsA. An international cross-sectional and longitudinal validation study was performed in 13 countries to examine correlations of the PsAID score with other PsA or generic disease measures. Test-retest reliability and responsiveness (3 months after a treatment change) were examined in two subsets of patients. Results Two PsAID questionnaires were developed with both physical and psychological domains: one for clinical practice (12 domains of health) and one for clinical trials (nine domains). Pain, fatigue and skin problems had the highest relative importance. The PsAID scores correlated well with patient global assessment (N=474, Spearman r=0.82-0.84), reliability was high in stable patients (N=88, intraclass correlation coefficient=0.94-0.95), and sensitivity to change was also acceptable (N=71, standardised response mean=0.90-0.91). Conclusions A questionnaire to assess the impact of PsA on patients' lives has been developed and validated. Two versions of the questionnaire are available, one for clinical practice (PsAID-12) and one for clinical trials (PsAID-9). The PsAID questionnaires should allow better assessment of the patient's perspective in PsA. Further validation is needed.
dc.language.isoen
dc.publisherBMJ
dc.relation.isversionof10.1136/annrheumdis-2014-205207
dc.rightsinfo:eu-repo/semantics/openAccess
dc.subjectRheumatology
dc.titleA Patient-Derived and Patient-Reported Outcome Measure For Assessing Psoriatic Arthritis: Elaboration and Preliminary Validation of The Psoriatic Arthritis Impact of Disease (Psaid) Questionnaire, A 13-Country Eular Initiative
dc.typeinfo:eu-repo/semantics/article
dc.typeinfo:eu-repo/semantics/publishedVersion
dc.relation.journalAnnals Of The Rheumatic Diseases
dc.contributor.departmentİç Hastalıkları
dc.identifier.volume73
dc.identifier.issue6
dc.identifier.startpage1012
dc.identifier.endpage1019
dc.description.indexWoS
dc.description.indexScopus


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