Serebral Palsili Çocuklarda Spastisiteyi Azaltmaya Yönelik Uygulanmış Nörotoksin Müdahalelerinin Çocuk ve Aile Üzerine Etkilerinin Aİle Görüşleriyle İncelenmesi

Abstract

Kaya, G, The Investigate Effects of Neurotoxin Interference on Child and Parent to Applied for Decreasing the Spasticity of Children Which Have Cerebral Palsy by Discussing the Parents Views, Hacettepe University, Graduate School of Health Sciences, Physical Therapy and Rehabilitation Program, Master Thesis, Ankara, 2024. The aim of this research is investigate in terms of the families of children's activity, participation and quality of life after the intervention, from the perspective of their children with spastic Cerebral Palsy (CP), who underwent neurotoxin intervention to reduce spasticity. In addition, how the parents are affected in terms of their quality of life and care burden is investigated within the scope of this study. 60 children with spastic CP with an average age of 5.4±2.0 years who were applied neurotoxin have been included in the study. The Gross Motor Classification System Family Report (GMFSS A&R), Pediatric Outcome Data Collection Instrument (PODCI) to evaluate children's activity level, Child and Adolescent Participation Scale (CASP) to evaluate children's participation, Pediatric Quality of Life Inventory (PedsQL) to evaluate quality of life, Zarit Caregiver Burden Scale to evaluate the caregiver burden and "Family Opinion Evaluation Questions" designed within the scope of this study to evaluate personal and environmental factors have been used. In our study, when comparing activity levels before and after neurotoxin application, a significant change has been found in PODCI scores, upper extremity, transfer, comfort, happiness and global scores (p<0.05). According to PedsQL results, in terms of children's quality of life, significant and positive changes have been detected in all subsections except speech (p<0.05). When families were evaluated in terms of care burden, families stated that their children's care burden had decreased and the change in care burden was statistically significant (p <0.05). It has been found that there were significant increases in the quality of life of children and their families (p<0.05). No significant change has been found in the questioning of the change in children's participation levels and difficulties (p>0.05). As a result of the study, although a significant change has been detected in the activity level, this has not been reflected in the participation. Key Words: Cerebral Palsy, Physiotherapy and Rehabilitation, Spasticity, Activity, Participation, Life Quality, Parent, Caregiver Burden