İŞLEVSELLİK, YETİYİTİMİ VE SAĞLIĞIN ULUSLARARASI SINIFLANDIRMASI (ICF) TEMELİNDE YETİŞKİN KİSTİK FİBROZİSLİ BİREYLER İÇİN ÇEKİRDEK SET OLUŞTURULMASI

Abstract

Cystic Fibrosis (CF) is a genetic disease that affects multiple body systems, mainly respiratory and digestive. Quality of life in individuals diagnosed with CF is negatively affected by multisystem involvement and increased treatment burden. International Classification of Functioning, Disability and Health (ICF) Core Sets are created by selecting appropriate categories for the current disease from the ICF classification, allowing a quick and practical assessment of the patient's current situation. The aim of our study was to develop a core set that quickly and practically evaluates the current status of the patient specific to adult CF individuals in Turkey based on ICF and increases coordination within the interdisciplinary team. Our study included literature review, patient and healthcare professional perspective, and consensus stages. In our study, 143 full text articles were examined. 30 individuals with CF, 40 physiotherapists and 31 physicians responded to the 6-question survey. From the body structures component, 2 categories from level 1, 13 categories from level 2 and 7 categories from level 3 were specified. From the body functions component, 14 categories from level 2, 11 categories from level 3 and 1 category from level 4 were specified. From the activity and participation component, 1 category from level 1, 9 categories from level 2 and 10 categories from level 3 were specified. 1 category from level 1 for the environmental factors component,2. 20 categories from level 3 and 4 categories from level 3 were specified. The diversity of ICF categories reported in the stages of ICF core set creation highlighted the known heterogeneity of CF and the diversity of functions in adulthood. The importance of the environmental factors component, which indicates the importance of person-environment interaction, has been overemphasized. We anticipate that the current results will increase the success of evaluation and treatment by identifying the most common problems for adults with CF in the Turkish sample.