Show simple item record

dc.contributor.authorFoster, Helen E.
dc.contributor.authorMinden, Kirsten
dc.contributor.authorClemente, Daniel
dc.contributor.authorLeon, Leticia
dc.contributor.authorMcDonagh, Janet E.
dc.contributor.authorKamphuis, Sylvia
dc.contributor.authorBerggren, Karin
dc.contributor.authorvan Pelt, Philomine
dc.contributor.authorWouters, Carine
dc.contributor.authorWaite-Jones, Jennifer
dc.contributor.authorTattersall, Rachel
dc.contributor.authorWyllie, Ruth
dc.contributor.authorStones, Simon R.
dc.contributor.authorMartini, Alberto
dc.contributor.authorConstantin, Tamas
dc.contributor.authorSchalm, Susanne
dc.contributor.authorFidanci, Berna
dc.contributor.authorErer, Burak
dc.contributor.authorDermikaya, Erkan
dc.contributor.authorOzen, Seza
dc.contributor.authorCarmona, Loreto
dc.date.accessioned2019-12-10T10:36:46Z
dc.date.available2019-12-10T10:36:46Z
dc.date.issued2017
dc.identifier.issn0003-4967
dc.identifier.urihttps://doi.org/10.1136/annrheumdis-2016-210112
dc.identifier.urihttp://hdl.handle.net/11655/13968
dc.description.abstractTo develop standards and recommendations for transitional care for young people (YP) with juvenile-onset rheumatic and musculoskeletal diseases (jRMD). The consensus process involved the following: (1) establishing an international expert panel to include patients and representatives from multidisciplinary teams in adult and paediatric rheumatology; (2) a systematic review of published models of transitional care in jRMDs, potential standards and recommendations, strategies for implementation and tools to evaluate services and outcomes; (3) setting the framework, developing the process map and generating a first draft of standards and recommendations; (4) further iteration of recommendations; (5) establishing consensus recommendations with Delphi methodology and (6) establishing standards and quality indicators. The final consensus derived 12 specific recommendations for YP with jRMD focused on transitional care. These included: high-quality, multidisciplinary care starting in early adolescence; the integral role of a transition coordinator; transition policies and protocols; efficient communications; transfer documentation; an open electronic-based platform to access resources; appropriate training for paediatric and adult healthcare teams; secure funding to continue treatments and services into adult rheumatology and the need for increased evidence to inform best practice. These consensus-based recommendations inform strategies to reach optimal outcomes in transitional care for YP with jRMD based on available evidence and expert opinion. They need to be implemented in the context of individual countries, healthcare systems and regulatory frameworks.
dc.language.isoen
dc.publisherBMJ
dc.relation.isversionof10.1136/annrheumdis-2016-210112
dc.rightsinfo:eu-repo/semantics/openAccess
dc.subjectRheumatology
dc.titleEular/Pres Standards And Recommendations For The Transitional Care Of Young People With Juvenile-Onset Rheumatic Diseases
dc.typeinfo:eu-repo/semantics/review
dc.typeinfo:eu-repo/semantics/publishedVersion
dc.relation.journalAnnals Of The Rheumatic Diseases
dc.contributor.departmentÇocuk Sağlığı ve Hastalıkları
dc.identifier.volume76
dc.identifier.issue4
dc.description.indexWoS
dc.description.indexScopus


Files in this item

This item appears in the following Collection(s)

Show simple item record